The NB Handbook

The Children’s Neuroblastoma Cancer Foundation (CNCF) is proud to launch the online version of the CNCF Handbook for Parents of Children with Neuroblastoma.  The handbook was developed by and for families affected by neuroblastoma.

Please click here to explore the handbook!  

Also, please don't forget to tell others about the handbook.  Click here to find out how to spread the word.

Upcoming Events

Now - December 31, 2008
Help the CNCF raise money for research and neuroblastoma initiatives.  It is simple.  Just give up one lunch and help fund the cure.  Your donation could also help to send a child with neuroblastoma and their family on a drema vacation to Walt Disney World. Find out more at http://www.lunchforlife.org/.
December 20, 2008
Ridglea RoundUp
Join us at the Ridglea Theatre in Fort Worth, Texas at 7:00 PM for a night of country music.  All proceeds from the event will benefit the CNCF.  For more information click here.
January 9, 2009
Comics for a Cure
Join comedians Gary Gulman, Nick DiPaolo, Joe List, Kevin Knox and Kelly MacFarland as they celebrate the families and medical staff who support the many children who are diagnosed with cancer. Proceeds will benefit the Children's Neuroblastoma Cancer Foundation to fund reseach and clinical trials as well as educate and support families who have been affected by this deadly disease.  For more information and to purchase tickets, go to:  http://www.comicsforacure.org/.

Promotions

The Neuroblastoma Awareness Bracelet is now available.  This beautiful bracelet is a great gift for the holidays, birthdays, anniversaries or any occasion.  All proceeds benefit the CNCF.
The traveling neuroblastoma awareness campaign is on to it's next three month showing at Cook Children's Medical Center in Fort Worth, TX.  In the meantime, the gallery has been brought to the web where you can see some of these inspirational works first hand.  The is Life -Through the Eyes of a Child Living with Neuroblastoma.
The Lunch for Life Cookbook is a collaboration of families of children with neuroblastoma.  Over 100 families contributed their absolute best recipes to the production of this cookbook.  Not only will purchasing this cookbook go along way in aiding our quest for a cure but we believe you will also be receiving some of the best recipes on the planet.

Call for Proposals Postponed

The 2008 - 2009 Call for Proposals has been postponed until later in 2009.  Please check back for further details.

Articles

An interesting article was recently published in the January 15, 2008 edition of Clinical Cancer Research.  The article, “Sodium Thiosulfate Administered Six Hours after Cisplatin Does Not Compromise Antineuroblastoma Activity”(1)...

Videos

A touching video on neuroblastoma.  All children festured in this video have been touched by neuroblastoma.  It is an important look into what these children need.
Our YouTube channel is here to share our stories, provide hope and awareness, and to provide important medical interviews about neuroblastoma and it's treatment. .

Recommended Hosts

Join the CNCF on Facebook here you will find more ways to connect to make a difference.>
Yes, CNCF is on YouTube as well. Please visit, watch some of our spectacular videos, and share your own.
Do you have space on MySpace. So do we. Visit us often.
Did you miss some of our educational conferences and seminars. Get them on Google Video.

Welcome!

Welcome to the Children's Neuroblastoma Cancer Foundation website!

Your child has been diagnosed with neuroblastoma. Welcome, you’re not alone.  The Children’s Neuroblastoma Cancer Foundation (CNCF) supports families living with this disease. We’re the primary source for the most current, reliable information and resources available.  Providing a forum for patients and family members, our educational services bring together clinicians, researchers and medical experts.

Please join hands with ours.

CNCF educates the public of a disease lacking in awareness and funding. We serve as an advocate for appropriate legislation, as well as a liaison between healthcare providers and families.
And of course, hope. We bring that too. Emotional support is shared amongst all whose lives are affected. Hope is what unites us. It’s what keeps us fighting. It keeps us from losing sight of our overall mission. To find a cure.

We can’t change the circumstances. But together, we can change the outlook.

We know what you’re going through. CNCF is made up of families just like yours. We care. And we’ll keep you informed.

FAQs. Fundraising options. Online forums. The latest research overviews. Strategies to help you cope. Let our website be your best resource. Log on and sign up for email updates and newsletters. We’ve even created a virtual medical file you can download to help document doctor visits and test results.

CNCF Support Services

  • Maintain a forum for patients and family members, including educational services bringing together clinicians, researchers and other medical experts.
  • Share information concerning symptoms, diagnosis, treatment and care.
  • Provide emotional support for parents and siblings.
  • Maintain a website and newsletter for ongoing communication.
  • Provide tools to simplify medical record-keeping.

What's New

  • Re: How to give Septrin?

    My son was the worst about taking his meds and he's stronger than me. This made "medicine time" very interesting. We have the septra that is pink liquid and is supposed to taste like bubble gum, but it has a truly horrible aftertaste! If your daughter is as stubborn and as smart as my son, there is no tricking her. We tried everything...
    Posted to General (Forum) by cherieaimee on 01-02-2009
  • Re: Help Fund Research Now!

    Hey, Mark, may I copy this for our facebook group?
    Posted to General (Forum) by dawnie on 12-20-2008
  • Re: How to give Septrin?

    I am guessing this is an antibiotic? Not familiar with that name, but I'm guessing it's the same as septra/bactrim. I do a couple of differnt things. One, the liquid that our pharmacy stocks is grape flavored. I put it in purple grape juice and he doesn't usually notice it. When we do tablets, I have crushed them up and put them in chocolate...
    Posted to General (Forum) by dawnie on 12-20-2008
  • How to give Septrin?

    Hi My daughter no longer needs her nb tube for feeds but still has it because she will put no medicine in her mouth, its only need for seprin 3 days a week. There is absolutely now way of talking her round she is very stubborn. A nurse suggested the tablets because her dose would only be half a tablet. Not sure what to put it in as most of her diet...
    Posted to General (Forum) by Faithjm on 12-12-2008
  • Re: mark/candace re: just diagnosed

    YEEEE Haaaaaaaaaaaaaaaaaaaaaaaaaaaaa! Nice to see some good news!!
    Posted to General (Forum) by dawnie on 12-08-2008

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